Monday, January 26, 2009


I first want to say that if you've tried to leave a comment and haven't been able to, I think that might be fixed now. It's funny how blogs work. I basically cut a portion out of my HTML and pasted it right back in the same spot. Amazing!

Speaking of blogs, if you haven't noticed the blogs that I follow, take a look at them. They are over on the right hand side of the page. In my list, you will see the blogs of two very special people in my life: my daughter and my husband.

Rani's blog, You Can Only Wake Up Once From a Dream, is not always about Lily, but if you want the perspective of a teenager and how she is dealing with a life that is surrounded by the fact that her little sister's life is fragile, you'll get it. I'm amazed at how much love she already has for her unborn sister, and I know she worries deeply. Please, if you've put us on a prayer list, remember to include her and Autumn.

Dave's blog is called Letters to Lily. One day, he was talking to Rani about life and college and other issues, and he realized that he probably won't ever get a chance to share these life-learned lessons with Lily, so he has decided to post letters of advice to her. They are sweet and endearing and tender, and his voice speaks as if he were holding her in his arms.

Another blog that I follow is A Journey of Love and Faith. It is about Timothy, a little boy with Trisomy 18, who was able to give his parents and brothers and sister joy for 2 hours and 50 minutes. Jennifer, his mom, amazes me with her strength and her faith in God. I have been very fortunate to have her as someone I can talk to, for she has been through much of, if not more than, what I'm going through.

Praise You in This Storm is another blog I follow. Little Maddie does not have Trisomy 18; she has Triploidy, where all of her chromosomes strands have an extra chromosome. Her mother, Loni, has a 1% chance of carrying to term. Maddie is a fighter because, if I'm not mistaken, she's due not too long after Lily is! Loni and her husband have incredible faith, and they, too, are inspirations.

The final blog I'd like to share with you is O Love That Will Not Let Me Go. It is of Magdalena Grace, a little girl who recently passed away due to complications from Trisomy 18. She lived for roughly 150 days, I believe. Once again, here is an incredible story of faith and hope and love.

These blogs have become a part of my life. In some ways, they mirror my life. I know it takes time to read these blogs and even mine, but I've learned so much from the people who have taken the time to post. They are all true inspirations.

1 comment:

  1. So happy that I can finally comment again! I missed being able to tell you what a wonderful job you are doing on this blog. I have already started reading the other blogs and I enjoy the letters to Lily and I love reading Rani's blog. She has a wonderful spirit that loves her sister very much.