Sunday, January 27, 2013

Pedal Power 2013

I am thrilled to announce that in March, I (along with seven other incredible ladies) will be spinning with the Pedal Power team in Pattison's Academy's 6th annual spin-a-thon!  Lily's OT invited me last year to be on this year's team, and I. Can't. Wait!!!

Visiting the spin-a-thon last year was an incredible experience (click here to read about it), so it will definitely be an honor to participate this year.  It was even suggested that Lily could ride with me!  How cute will that be!?!?

In just a few days we will find out if Pattison's will be Lily's school or if she will just attend their summer camp.  (Since it's a charter school, admission is based on a lottery drawing.)  If Lily doesn't get into Pattison's, that's ok, but it would be GREAT if she did.  The school she currently goes to is fine, but Pattison's is more suited to her needs.  Therapists are always there, they have more specialized equipment, and they LOVE Lily!!  (Ok, so do her teachers at her current school!)  

So even if Lily doesn't get to attend Pattison's school, my heart is with them and I'll always support them.  I think the concept is incredible!  I love how the school does its best to give special needs children normal experiences.  So I am elated that I get to ride.  But with riding comes fundraising.  Our team's goal is to raise $2000, and if you feel led to help support this wonderful school and summer camp, please visit our team's Firstgiving page and consider donating.  You can easily donate from there.  (Oh, and if you do, please let us know that your doing it because you know Lily.)  Here's the link:

And feel free to pass this link on to others that you know--there are Facebook, Twitter, Email, and Share buttons so you can easily do so.  Share Lily's story while you're at it.  Any donations will be gladly appreciated!

As Lily's stamina increases, so does her ability to take more (and better) steps in her gait trainer, to walk assisted with bigger and faster strides, and to push herself into crawling and sitting positions.  Even if it's just summer camp, Pattison's is a place where Lily will get extra exposure to the resources that will help her improve even more.  This family LOVES Pattison's!

Saturday, January 19, 2013

Will she crawl?

Once again, it's been a while since I've posted.  We are so busy around here!  It has been such a pleasure watching Aria grow and listening to Soleil as she talks up a storm and getting Gabriel ready for Kindergarten!  And Rani and Autumn are finding out what it's like to be an adult and to have adult decisions to make.  It's nonstop!

And Lily?  Well, Ms. Lily is trying her best to crawl!!!  Just the other day, I was playing with her on the floor, and she kept getting into crawling position (which she does quite easily these days) and sitting up with her feet under her.  I began clapping my hands and trying to get her to come to me, and she'd reach for my hands.  Then I'd clap them on the floor, and she'd get into crawling position and paw at the ground, trying so hard to coordinate her arms and legs to get her moving.  Dave came in the room, so I had him take my place, so I could get behind Lily and help her move her legs. Before I could start, though, Lily would look back at me and then make herself move so that she was facing me instead of Dave!  She turned herself completely around to play with me!  Later in our play, Dave put his hand under Lily's chest while she was in crawling position and just gave her support.  That was what she needed because with that support, she was able to move her legs as if she were crawling.  (She can move her arms, it's just the shifting in weight that is difficult for her.)

And get this:  It's not easy for her to do, but today, she finally inched each leg forward!  We've never seen her do that before on her own!

I sit on the floor and play with Lily, and we have such a good time.  We play, and something rings in my heart where I JUST KNOW she's going to crawl.  I don't know if it's a mother's intuition or if it's hope or what, but I really believe this girl can do it!

Ha!  Can you imagine?  A two year old running around and Aria crawling all over the place. . .then keeping up with Lily, too!  Oh, yes!  I will definitely have my hands full!  

Bring it on!