Saturday, July 25, 2009


In the past week, it seems that Lily has developed some reflux issues. I've been putting off a doctor's appointment, thinking that it's the tomatoes I've eaten so it'll clear up, (and I actually thought it had cleared up last night, which it did not) so I'm miserable.

She's been experiencing these episodes at the night feeding, around 9 or 10. After she eats, she'll contort her little body and stiffen up, and you can just see the yuckiness all over her face. She looks as if she's tasted the worst food possible. I know it hurts her, and since I have no medicine to give her, there's nothing I can do. Trust me, I've tried everything.

I've fed her with her sitting up. I've burped her with her sitting up so as not to put pressure on her abdomen. I've stopped eating tomatoes. I've tried to massage her and help her relax. She won't take a pacifier, which the speech pathologist says to use. She says saliva helps neutralize stomach acid. What else have I tried?

Well, I could probably remember if I weren't so tired. Last night, we thought we were in the clear. Lily's 9/10 o'clock feeding came with no episode. I should have listened to myself and gone to bed when I put her down. Why do I have to be so stubborn? At 12, she woke up wanting to eat. I fed her the way I usually do and then waited a few minutes (probably not long enough, but hey, my eyes were so tired they were sticking to the back of my eyelids) and put her back in her bed. Then I heard it. Those sounds she makes when she's uncomfortable and trying to make it go away. I got her out of bed and the fun began. I was up with her until almost 2 when Dave took over. I have no idea how long he was up with her.

Our doctor has a Saturday clinic that he runs with a few other doctors, and I'm hoping he'll be there today. I trust our doctor. He's had a patient with T-18 before, and he's been wonderful with Lily. I'm just waiting until 10 to see if they're open.

And all of this wouldn't be so bad, but I'm not getting enough sleep. I laugh when I say that we've created a monster when we started nursing. Lily now won't take a bottle! (Let's hope I don't have to go back to work!) So Dave can't even get up with her in the middle of the night and feed her.

I feel bad for Lily. I know this hurts her, and I hate that she's going through this. OK. It's 10 and the clinic still isn't open. More frustrations!


  1. I am praying that you get some help from the doctor today. Ask him if you can try the Mylicon drops. I know it worked well for one T-18 baby. I will pray that Lily feels better, which in turn, means you get rest!

    Love from California,

  2. A friend's baby developed reflux. She cut dairy out of her diet and that helped a lot. My daughter had to do the same with my grandson. Didn't know if you'd already tried that.

  3. Please, God, relieve Lily's discomfort and reveal the source of her distress...please, God, have mercy on Lily...and please give Jill rest and peace and clarity. In Jesus Name. Amen.

  4. Praying for Lily's comfort. Has she had a test for reflux, like up GI or PH probe? I will check back in to see how she is. Reflux with our little ones can be too scarey.