Quality of Life Week--Day One--Drive and Determination

For some reason, I thought that my Quality of Life Week posts were created in March, and I also thought they were from last year. Wrong! It seems as if they were from two Septembers ago. My how time has flown! After thinking about it, it just seems more appropriate that my Quality of Life Week posts should be in March for Trisomy Awareness Month. After all, part of our advocacy is about showing that our trisomy children do have quite the quality of life. Unfortunately, the textbooks never show that. Hopefully, the videos that I post this week will show that children with Trisomy 18 can have a very positive quality of life.

Well, I've been giving some thought today about what "quality of life" means. Sure, a child with a positive quality of life should be happy, well taken care of, etc. But there seems to be more. I've come up with five qualities that Lily has that shows she has a positive quality of life: drive and determination, soul, laughter, play, and love. Today's videos show Lily's drive and determination. She is such a hard worker! And she loves to hear "Good girl!" Every therapy session surprises us with her giving that much more. The first video was taken in September; the second, in November.