But we didn't stop there. After Lily's g-tube surgery, we took about a two-month rest from therapy while we waited for paperwork to be transferred and new agencies to kick into gear. Lily had her pt evaluation on July 14. During that evaluation, Lily would sit up for maybe one or two seconds and would not weight-bear on her legs. After four months of weekly one-hour therapy visits, Lily began to bear weight on her legs. Around the same time, she also had a few instances where she sat on her own for over a minute.
If you saw Lily stand, you would know why she has been so successful at it. She loves it! She is so proud of herself and her accomplishment. I love that type of motivation! Lily is now at the point where she will sit at the edge of a bouncy seat and push herself up to standing (with us holding her under her arms). Sometimes, you can just see (and hear) the drive she has to get herself into that standing position. She struggles, but she wants to stand so badly.
At this point, she can sit by herself, but she has this bad habit of nodding her head backwards and falling back. I think it's a game for her, and we're always there to catch her, but she gets a kick out of it. I don't know how we'll change that habit of hers. There have been times when she has sat for more than five minutes. We're really successful if she's distracted with something like football. (My little tomboy!)
Despite all of this sitting and standing, Lily may never walk. That doesn't mean that we won't give her the opportunity to take that first step if that's what she's interested in doing. We give her plenty of chances for that. But I think her own motivation pushes her as much as we do. Who knows, maybe one day I'll be sharing a video of her walking.
This video was taken at Thanksgiving. Normally, we would hold Lily under her arms, but this time, she used the coffee table to support herself. I love this video because it shows how happy Lily is when she stands.
This is wonderful! So proud of Lily and so happy for the love and encouragement that she receives from you. Love Shannon (Oliver's mom)
ReplyDeleteJill, I will be back to read this post. I always love the videos so thank you for doing them. I must learn so I can put videos of Annabel on her blog. I wanted to answer you back right away about the ipad. The first blog I came across was isaacgrove.blogspot.com This mom has some pics of this child using the ipad and I became interested. She gives some of his favorites. But she also give reference to this wonderful blog where this mom is so into it and I am not sure if she has a degree in some sort of therapy or communication. Her is caleighscorner.com
ReplyDeleteThere is one more that I haven't read yet but has many apps listed. I am not sure how right they will be for Annabel but I will give you this site also. This guy seems a bit older than my child but it is juniorsvoice.blogspot.com
Some of these apps are free and they are usually have the word lite after the name of the app. I sometimes download the free one to see if I like the voice on it or the pictures before I pay. Most all are 99 cents, or $1.99.
The one I did download that does cost a substantial amount of money but it is on all of the communication devices is the Proloquo2Go. This was 189.00. Big expense but I feel like when I really have time to read it will be to her advantage. I will keep you posted. Thank you for all your sweet comments.
Yay Lily! I'm so impressed! I pray that one day my Lilly will be able to stand up too!
ReplyDeleteWay to go, Lily!
ReplyDeleteWooHoo Lily! Please tell her that another pediatric PT is PROUD of her!! I share the same info with the families that I work with about independent sitting by 2 so YOU GO GIRL!!! She continues to share herself and thank you for sharing it with us!! Continuing to send hugs and prayers
ReplyDeleteCindy
(Jordan's Mom)
yay lily!!
ReplyDelete