Monday, April 30, 2012

Happy Birthday, Lily Grace!!!

Three years ago today, you entered this world and our lives were changed.  You were so surrounded by love!  We watched the clock as the seconds turned to minutes, and the minutes to hours, the hours to days, then months.  Then a year.  Before we knew it, a second year had passed us by.  

And now a third.  

I am in awe.  I am so amazed by your strength,  your courage, your determination.  To not know, you know.  You are so aware!  

You are a big girl, now!  You get to start school, and that terrifies me and excites me.  Again, I am filled with these complex emotions that I struggle to deal with.  This is not the trivial letting go of the bicycle that I'm dealing with here.  I'm letting go of control over your well-being.  I know you will be in good hands, but I'm still so very afraid.

You are beautiful and life-loving, and I feel so blessed and fortunate that you are a part of our family.  And while it does have lots to do with the fact that you're still here despite statistics, it has more to do with the fact that you have taught us so much about loving life and appreciating it and being thankful for all those little things that tend to be overlooked.  You have so much to teach the world!  Not just about Trisomy 18, but about how life is supposed to be lived.

Thank you for teaching me so much.  Thank you for fighting for yet another year.  I am in deepest hopes of many more to come.

I love you, my little Lillikins!


  1. Happy Birthday beautiful little girl! I'm so happy that I was fortunate enough to spend the morning with you! Love always, Aunt Bon

  2. Happy, happy birthday, Lilly!!! You are such an amazing girl! Wish we could celebrate with you in person!


  3. What a wonderful gift. And I'm grateful you're willing to share her with us. Love and blessings for you all.

  4. Happy Birthday, Lily~ sorry I'm a day late. :) You are a gorgeous little girl and bring so much joy to your family. You give us (your followers) so much hope and a peek into Heavenly places. :)