Sunday, August 28, 2016

C is for. . .

And this is why on September 7, Lily will be having surgery on her back. It breaks my heart to see her this way, all crooked and contorted. 

I can remember when she was an infant, how she would lay on my shoulder like a little letter C.  It was almost as if her little body was trying to tell me, "C is for crooked. C is for contorted."

But it's also for cute and cuddly and charming and lots of other positive words that make up her little frame. 

I'm scared to death of this surgery, but at the same time, I know it is what's best for Lily. Eventually, her lungs will be compressed by the weight of her body's leaning and the squeezing of her to cage and her breathing will be compromised. That seems even worse than surgery. 

We have a little over a week to once again prepare for this bodily invasion. I'm doing good so far, but I'm really trying not to succumb to the negative thoughts and feelings that gripped me once before. I want to have good thoughts. I want to be at peace with this. I want to enjoy these last few days before Lily loses all that she's gained in these amazing six years. It's going to be a fight, but I'm hoping all of that loss will only be temporary. 

We've had a lot of positive comments about her doctor and the procedure itself. 

And as we've seen with Lily before, C is also for champion. 


  1. Oh, Lily.... Sending hugs mama. Are they doing the magnetic rods or the VEPTOR ones?

  2. Love and prayers are being sent!!

  3. I'll be praying Lily's surgery is a success and she pulls through just fine. C is also for cherished. :)