Lily is now home! The surgeons said she looks perfect, but we still have not heard back from the cardiologist. I should have called the cardiologist today, but it's been a whirlwind. Lily is tolerating her feeds, even though they are small--she gets 20 ml of breast milk and then nurses for her normal time. When she nurses, she's latched on for 30 minutes, usually, but she doesn't eat the whole time. Yes, I am not only the milk provider, I'm also the pacifier. I like that Lily finds comfort in me like that, but it's time to wean. I think we're going to take it easy this first week and gradually take out the nursing.
I'm just glad we're out of the hospital and Lily is doing well. Thank you, so much, again and again, for your thoughts and prayers. What a blessing you've been to our family!
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what great news. you've given her so much goodness with breastmilk for so long! hats off to you.
ReplyDeleteSo glad she is home and doing well. I pray that all continues to go well with you getting her off the nursing. How are you feeling about the tube feeds so far??
ReplyDeleteCongrats on all the progress! Lilly is a remarkable little girl! I have been following her story for ages now, but this is my first comment... just so proud of how far she has come, and how BLESSED she is to have you for a mom! (I know you feel the same way, having her for your little girl!) Keep us the great work! Hugs, ag.
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